Yesterday was Chloe's second EEG. I wanted her to have either a 24 or 48 hour EEG done but the machines for that were out and so we got the one hour one done. It's not fun, for her or me. And it required two adults to get her there. One to drive and one to keep her awake. She had to be sleep deprived which means I had to be sleep deprived as well. Not fun. So they got us in and registered without any wait, then came the really fun part. They measure her head and stick like thirty leads on her head then wrap it with gauze and they stuck two to her ears and one on her heart. All the while she is telling us in no uncertain terms that she does not like the leads on her head, she's tired and she wants to go to her bed in her house. For a little girl who doesn't talk you would be amazed at how she communicated that to us LoL. Then after all that the lady just expected her to just drop right off to sleep. Ha! With all the crying she had caught her second wind. Once she calmed down and stopped protesting she decided it was play time. Great! So after over thirty mins of practically sitting in her to keep her still, ok not really but you know. She finally drifted off to dream land. They let her sleep for about 15 to 30 mins and they wanted to wake her up and shine strobe lights in her face. Not a happy camper. After all that she fell asleep in her aunts arms before we even reached the elevators and did not wakenup for four hours. Poor thing!
Ok so you want to know after all that, how did it go? I have no idea. I never did hear anything back from anyone all today. Tomorrow I start the phone calls and I'll update when I find out more. The only thought was man, I hope she gets used to this. If we get her in to the clinical trial in Boston, she will have an EEG done every 4 weeks for 40 weeks. But hey, praise God we have this technology and get to see what is going on in her little cute head. Until next time...
No comments:
Post a Comment